Anxious but not excited for my upcoming hospital visit, but there is a chance for answers so im keeping my head held high and my mind optimistic. I finally have just accepted the fact that im not like everyone else and i should stop worrying about the looks i get when im in the mall in my wheelchair. I cant do anything to fix what i have so i should live everyday to the best of my ability.
I was at the mall yesterday and the only way i can do stuff with out passing out is to wheel around in my wheelchair, at first i was super paranoid about how people will perceive a 15 year old in a wheel chair and yet i look absolutely fine, i began to realize that if i just smile and take in the ability to be out of the house for an hour, it was all good, i felt almost normal finally after 4 months of not being able to walk through the grocery store or anywhere.
I want to suggest to you all who are reading this, people in wheelchairs most all hate being in a wheelchair and would throw the darn chair out the window if they could ( my feelings of my wheelchair), now when people have to stop dead in there tracks and stare it makes the situation a million times worse, i suggest you just smiling at the person in the wheelchair. I cant change the fact that i have to be in a wheelchair. The people who just smile back at me, its a huge thing to me. after being the person to run around everywhere cause i couldnt stay still, a wheelchair really isnt anywhere near a friend to me but after yesterday im beginning to like it just a tiny bit more.
I have a very strong opinion about lots of things but the wheelchair situation is a huge deal, im sure those of you in wheelchairs agree with me, i might not get around the same way as you but that does not make me someone to stop and stare at.
Another thing i would love to mention is this book that i ordered, I suggest anyone with pots or anyone who knows someone with pots must read this book.
POTS TOGETHER WE STAND, RIDING IN THE WAVES OF DYSAUTONOMIA
WRITTEN BY JODI EPSTEIN RHUM.
This book has been crazy for me to read, i finally feel like im not an alien and that people out there in the world are living each day like i am. This book is filled with ways to cope with symptoms and the medical reason for alot of things.
Thanks for reading, hope i can be of some help to someone,
Live each day to fullest, never give up hope, always believe in yourself and believe someone out there and help you, never feel alone, there are many people in the world someone out there is going through something just like you.
Hannah :)
