Anxious but not excited for my upcoming hospital visit, but there is a chance for answers so im keeping my head held high and my mind optimistic. I finally have just accepted the fact that im not like everyone else and i should stop worrying about the looks i get when im in the mall in my wheelchair. I cant do anything to fix what i have so i should live everyday to the best of my ability.
I was at the mall yesterday and the only way i can do stuff with out passing out is to wheel around in my wheelchair, at first i was super paranoid about how people will perceive a 15 year old in a wheel chair and yet i look absolutely fine, i began to realize that if i just smile and take in the ability to be out of the house for an hour, it was all good, i felt almost normal finally after 4 months of not being able to walk through the grocery store or anywhere.
I want to suggest to you all who are reading this, people in wheelchairs most all hate being in a wheelchair and would throw the darn chair out the window if they could ( my feelings of my wheelchair), now when people have to stop dead in there tracks and stare it makes the situation a million times worse, i suggest you just smiling at the person in the wheelchair. I cant change the fact that i have to be in a wheelchair. The people who just smile back at me, its a huge thing to me. after being the person to run around everywhere cause i couldnt stay still, a wheelchair really isnt anywhere near a friend to me but after yesterday im beginning to like it just a tiny bit more.
I have a very strong opinion about lots of things but the wheelchair situation is a huge deal, im sure those of you in wheelchairs agree with me, i might not get around the same way as you but that does not make me someone to stop and stare at.
Another thing i would love to mention is this book that i ordered, I suggest anyone with pots or anyone who knows someone with pots must read this book.
POTS TOGETHER WE STAND, RIDING IN THE WAVES OF DYSAUTONOMIA
WRITTEN BY JODI EPSTEIN RHUM.
This book has been crazy for me to read, i finally feel like im not an alien and that people out there in the world are living each day like i am. This book is filled with ways to cope with symptoms and the medical reason for alot of things.
Thanks for reading, hope i can be of some help to someone,
Live each day to fullest, never give up hope, always believe in yourself and believe someone out there and help you, never feel alone, there are many people in the world someone out there is going through something just like you.
Hannah :)
Monday, December 24, 2012
Sunday, October 21, 2012
My diagnosis
I was just recently diagnosed with Postural Orthostatic tachycardia syndrome or P.O.T.S for short. It is called a syndrome because there is no cure for P.O.T.S. You most likely have not heard of P.O.T.S before because this is an extremely rare syndrome. P.O.T.S effects my ability to stand and allot of the time sit. Basically I'm just broken !
Over the last 8 1/2 months my life has been turned upside down. My story starts in June of 2012, this month marks the start of my difficult journey and the new me. As of June, I officially was diagnosed with P.O.T.S. After multiple trips to the emergency and doctors appointments I found a sense of relief, but I was also very afraid. I had not heard of P.O.T.S and I had no clue what it was, thanks to Internet I was reading for hours trying to absorb as much information as i could. I'm now trying to get through each day as well as i can, its an extreme struggle but with the support from my family, I'm trying my hardest.
Through this experience i have found out allot of things about myself and who my real friends are. When one day your life takes a drastic change, it hard to believe but not many people actually stay by your side. My life is all new and everyday is an unknown challenge.
The many doctors i have met over 8 1/2 months have been very help full and kind towards me. although there are not many options to help with the many symptoms, the doctors have encouraged me to drink 3-5 liters of water a day and 10-15 grams of salt. if you have P.O.T.S then you might not know but electrolyte filled energy drinks works way better than water. The increased salt intake was a huge challenge and at first i could not believe that i was supposes to have about a cup of salt a day.
Today my symptoms are worse than when i started showing symptoms and so far the few medications that the doctors have tried on me, have not worked and actually made my condition worse. I have read about girls who have found medications that work for them, so there is hope. lossing hope is easy to have but a up-hill battle to stay positive and believe that there is a chance of getting better in the future. Living in a small town, there really is not anyone like me but around the world there are poeople who are struggling to get through the day just like me. I look at myself and think how i do have it easy compared to all the sick kids living in a hospital. those kids are stronger than i could ever imagaine and i give my love and support to those families.
Hope lies in everyone, the challenge is finding it within yourself......
Thanks for reading,
Over the last 8 1/2 months my life has been turned upside down. My story starts in June of 2012, this month marks the start of my difficult journey and the new me. As of June, I officially was diagnosed with P.O.T.S. After multiple trips to the emergency and doctors appointments I found a sense of relief, but I was also very afraid. I had not heard of P.O.T.S and I had no clue what it was, thanks to Internet I was reading for hours trying to absorb as much information as i could. I'm now trying to get through each day as well as i can, its an extreme struggle but with the support from my family, I'm trying my hardest.
Through this experience i have found out allot of things about myself and who my real friends are. When one day your life takes a drastic change, it hard to believe but not many people actually stay by your side. My life is all new and everyday is an unknown challenge.
The many doctors i have met over 8 1/2 months have been very help full and kind towards me. although there are not many options to help with the many symptoms, the doctors have encouraged me to drink 3-5 liters of water a day and 10-15 grams of salt. if you have P.O.T.S then you might not know but electrolyte filled energy drinks works way better than water. The increased salt intake was a huge challenge and at first i could not believe that i was supposes to have about a cup of salt a day.
Today my symptoms are worse than when i started showing symptoms and so far the few medications that the doctors have tried on me, have not worked and actually made my condition worse. I have read about girls who have found medications that work for them, so there is hope. lossing hope is easy to have but a up-hill battle to stay positive and believe that there is a chance of getting better in the future. Living in a small town, there really is not anyone like me but around the world there are poeople who are struggling to get through the day just like me. I look at myself and think how i do have it easy compared to all the sick kids living in a hospital. those kids are stronger than i could ever imagaine and i give my love and support to those families.
Hope lies in everyone, the challenge is finding it within yourself......
Thanks for reading,
Sunday, September 16, 2012
A LITTLE ABOUT ME
Dear Reader,
My name is Hannah and I'm a 15 years old girl in high school. I'm not your average teenager in more ways than one. I have been a very active girl since i could walk, many of my life stories take place in gymnastics class and dance classes. In school, i have good grades and am very determined to do the best i can do. I have always loved hanging out with my friends and being a teenager. On the outside I'm like any other 15 year old, until the last few months. This blog of mine will allow you to read about my journey in life and the hurdles i have suddenly had to face. I encourage you to put yourself in my shoes when you read my up coming blogs. Remember to "live everyday to the fullest".
Thanks for Reading
My name is Hannah and I'm a 15 years old girl in high school. I'm not your average teenager in more ways than one. I have been a very active girl since i could walk, many of my life stories take place in gymnastics class and dance classes. In school, i have good grades and am very determined to do the best i can do. I have always loved hanging out with my friends and being a teenager. On the outside I'm like any other 15 year old, until the last few months. This blog of mine will allow you to read about my journey in life and the hurdles i have suddenly had to face. I encourage you to put yourself in my shoes when you read my up coming blogs. Remember to "live everyday to the fullest".
Thanks for Reading
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